Bergen Taylor Hightower

Thursday, November 7, 2013

This Little Light of Mine....

On Monday, October 7th at approx 5:45pm we learned the results of Isla's ERG directly from her Doctor at the Duke Eye Center.  As I stood there in Douglas' office listening to the doctor explain and review the results with me over the phone, I had almost fell to my knees. I've procrastinated about writing this post, only because it was actually right after I had just wrote about "HOPE" and I've been a little heavy hearted ever since that phone call and learning the results but I wanted to share with you all what we know about Isla's vision -- for now.

Isla's ERG results came back that her eyes were "non responsive" to most of the testing and that her vision is "extinguished". I just could not believe it. I cried myself to sleep that evening and to be honest, I still do that here and there. Douglas and I both have our moments. It's one thing to have HOPE & FAITH in God's plan and another to  hear "real" results and actually trying to get a grasp on the reality of what's to come out of all this but we trust his plan. 

Most people ask me how I stay so positive and happy all the time and that's because I truly feel in my heart that Isla Rose can see ---- LIGHT.  We see it everyday in her beautiful blue eyes how she responds to when the sun comes up and when things are lit up around her-- she lights up!  If that's all she can see visually, then we are beyond thankful for that. 

 With the recent results and because of her blindness, she experiences some physical delays.  So we have been given several resources and information to get Isla Rose the direction she needs.......and she just started therapy last week. Each Thursday, Isla Rose will have different types of therapy sessions.  She has a "Vision" Therapist from Morehead School for the Blind in the mornings and a "Physical Therapist" from Pediatric Theraplay in the late afternoon and they both play very big parts in this stage of her little life and all the way until she reaches the age of three. Isla Rose will learn differently from the way other children learn, but she will learn.

After our big day of therapy for Isla Rose today, it all kind of hit me again and I got a little upset. I guess that I am realizing our little angel cannot see like we can. Sometimes it's hard to grasp the fact that this is a reality but we're learning and it's becoming more "normal" to our everyday life -  if that makes sense?!?!

So, to end this post on a positive note.  I believe good things come to those who believe, better things come to those who are patient and the best things come to those who don't give up.

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